RA Sucks out loud
I have not felt this bad since I was first diagnosed and before we found some treatments that helped. The hip injection made the hip pain worse, not better. I am using my walking stick, AKA Big Red, to help me stand from a sitting position because it hurts so much that I can't do it without leverage. I am exhausted and frustrated. I was supposed to bring the prednisone down, but when I did I was really struggling so I increased again.
I haven't done yoga in weeks.
I am sleeping a ton but do not feel rested.
I have pain every day, and not just the regular 3/10...this is 7-8/10.
I feel like I am complaining all the time. I feel like I am no fun.
Last weekend, I forced myself to be social. We hung out with friends on Friday night for dinner and a movie then had friends over for lunch on Saturday. I am so glad to have seen friends and laughed and had fun, but then I napped 3 hours Saturday and slept until 1:30 on Sunday. I took a vacation day on Monday and tried to read...ended up falling asleep for a few hours.
Work is exhausting. Focusing and being productive on 20-30mg prednisone while still having pain is really challenging.
Friday we are increasing my Remicade, thank god. I know it may not make a difference but I am figuratively crossing my fingers that it does. Other biologics that worked for me initially failed after 2 years. I have been on Remicade three years now...
I am working to live mindfully and not jump to the scary place.